Waiting to go home

September 2021

Matthew & his heart surgeon

Matthew and his surgeon Dr. Ciccolo

Parenting a Medically Complex Child

"The stresses of parenting a child without medical conditions certainly exist, and they’re real and valid. For parents dealing with medically complex children, those typical worries still exist, but they have to take a back burner to more basic, primal needs that keep the child alive."


https://themighty.com/2015/04/the-fear-of-emergiences-when-parenting-a-medically-complex-child/?utm_source=engagement_bar&utm_medium=twitter&utm_campaign=twitter_share

Matthew in post op with Bryony ~ doing very well after cath

Cath Lab today, pre op with Kimberly and Bryony

Matthew's about ready for a new conduit.

Matthew is scheduled for a heart cath on Feb. 26th over at Sunrise.
Doctor Mayman told my sister and I that it's about time for a new conduit.
Get rid of the Melody Valve (He's had that since Feb. 2013)
and the old conduit that had been infected back in 2015.  Last open heart, conduit change was March 2006... so we've had a good run all these years. 
Matthew has grown and gotten so much bigger... time for a new valve. 
Doc told us to prepare for about summer. *Update* We will most likely find out more on Tuesday, March 5th as the cardiologists will meet Monday afternoon for a conference to decide when. 

Matthew's 'apartment'

Matthew happy to be living in Beaver, Utah now

Auntie Kim got a smile today.

A volunteer dog came to lift up his spirits... This is Cheerio.

Washing his hair with a rinse free hat.

His respiration rate was high even with oxygen and albuterol treatments.

Auntie Kim and Daddy

Getting a 4 hour continuous Albuterol treatment

Back in hospital

Everything looks great in his heart. Practically no leak now.

Waiting to go home

Just after surgery

In recovery

They allowed me to put on scrubs to come to the OR and hold his hand til he fell asleep

Waiting in pre op

Waiting with daddy in pre op

Waiting w his DVD player

Waited for 7 hours on Wednesday, needed to reschedule for the next morning

All smiles... for now

Happy Halloween!

Just chilling out at Grandma and Papa's ...LOL

First time in public school.

Not enjoying school one bit :/

Loves presents :)

Chilling at the dentist :)

Cutting some wood w his jet pack :)