One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
Thursday, December 07, 2006
HELLO!! This is Terri :-) , using Kim's name ~ I can't figure out how to do my own. Just a quick update. We went to the cardiologist for Matthew's ECHO on Tuesday. We always love to see Dr. Mayman. Our Dr. Mayman is watching a little valve leak. It is causing the right side of his heart to be a bit enlarged. Docs rate leaks from 1 to 10 ... 10 meaning he will need a valve replacement. In May, the leak was rated a 2 ~ Tuesday it was a 4.7 ~ Not sure if it will leak slowly or if it can increase. We of course are hoping for NO SURGERIES in the near future ... We'll just have to keep a watch on the leak. Matthew will be going in this Thursday, Dec. 14th for a catscan of his heart. Dr. is checking on his pulmonary branches and arteries ~ we are hoping they aren't narrowing. If so, they can dilate during a heart cath or they can put in a shunt. We'll see........Poor little guy, he will also be going in on Tuesday for a kidney reflux test (which will be quite unpleasant for him) and an ultrasound on his kidney. We are hoping that his kidney reflux as improved. Please pray that all will be okay for our little guy. Also, please pray for some friends of ours that we met at Stanford last year, their baby Little Lincoln Carter www.littlelincolncarter.blogspot.com ~ he had a stroke this week and he's waiting for a heart transplant.
Sorry, no pics... I don't know how to do that yet!! :-)
ReplyDeleteToodle Woo
Terri
I meant to say that we met the Carter's while we were at Stanford... their first baby died when he was 4 months old.
ReplyDeleteI feel so bad for them... after all they've been through...
Lincoln is just so sweet and adorable.. I believe that he's spent most of his life in the hospital. Please keep them in your prayers. He has a long way to go.
Terri