"The stresses of parenting a child without medical conditions certainly
exist, and they’re real and valid. For parents dealing with medically
complex children, those typical worries still exist, but they have to
take a back burner to more basic, primal needs that keep the child
alive."
https://themighty.com/2015/04/the-fear-of-emergiences-when-parenting-a-medically-complex-child/?utm_source=engagement_bar&utm_medium=twitter&utm_campaign=twitter_share
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
Saturday, October 12, 2019
Tuesday, February 26, 2019
Friday, February 15, 2019
Matthew's about ready for a new conduit.
Matthew is scheduled for a heart cath on Feb. 26th over at Sunrise.
Doctor Mayman told my sister and I that it's about time for a new conduit.
Get rid of the Melody Valve (He's had that since Feb. 2013)
and the old conduit that had been infected back in 2015. Last open heart, conduit change was March 2006... so we've had a good run all these years.
Matthew has grown and gotten so much bigger... time for a new valve.
Doc told us to prepare for about summer. *Update* We will most likely find out more on Tuesday, March 5th as the cardiologists will meet Monday afternoon for a conference to decide when.
Doctor Mayman told my sister and I that it's about time for a new conduit.
Get rid of the Melody Valve (He's had that since Feb. 2013)
and the old conduit that had been infected back in 2015. Last open heart, conduit change was March 2006... so we've had a good run all these years.
Matthew has grown and gotten so much bigger... time for a new valve.
Doc told us to prepare for about summer. *Update* We will most likely find out more on Tuesday, March 5th as the cardiologists will meet Monday afternoon for a conference to decide when.





