One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
What an amazing job you both have done. We all love the pictures of him eating and actually enjoying it. I think more of that will come.
ReplyDeleteIt really helps when he is feeling well and enjoying life. All the rest falls into place.
I Love all of you and miss you.
Grandma Sue
When Matthew comes to our house he eats by mouth all the time. He'll even ask, "want some yoghurt". I make him pringles and peanut butter sandwiches. He loves them. He loves string cheese and drinks apple juice. Once he goes through a sick spell, it's back to square one again. He thought an oatmeal cookie was pretty good too. It's a slow process.
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