One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
Tuesday, February 13, 2007
Matthew's Gastric Emptying Study
Matthew was a real trooper today. They gave him some mildly radioactive fluid and then took images of his digestive tract every ten minutes for an hour. We will get the results Thursday. Terri & I were relieved that the contrasting fluid went in through his g-tube and not down a tube in his nose. Based on the results of this test Matthew will likely need another test of his esophagus. As you can see by the look on his face, he was quite apprehensive about being in another medical office. At first he sounded his displeasure. Then, as it has done so many times, his mood turned to quiet acceptance of the way life can be.
I am so glad to hear that it wasn't too traumatizing for him! I hope the results are good!
ReplyDeleteIt was easy breezy! All of my fretting for nothing, really..
ReplyDeletehe was a real champ! We just sang little songs to him for each two minute session of having the pics taken. We got one of the nurses to take pics of us sitting w/ him.
They were quite nice.. in fact we were the first patient for one nurse who had a g~tube... she thought it was pretty great that all we had to do was pour it down .. and DONE DEAL!
Terri
Well the tears are welling just looking at his little sad face. He most definitely doesn't like that machinery and the whole scene. I am so happy it went well and yes he is definitely a little trouper (little braveheart). He is definitely comforted by the fact that Mommy & Daddy were right there the whole time. You are both wonderful.
ReplyDeleteI love you all. Grandma Sue
What a brave little man.
ReplyDeletehugs.
Matthew still reigns as my "super hero". It would have been difficult for me to lay under that big machinery for an hour while they floroscoped all that action. As long as mommy and daddy are there, Matthew seems to be able to endure anything. I saw him about 10:30 a.m. and he was his same ole self.
ReplyDeleteNow that he has learned how to unscrew lids, he played for an hour with a plastic peanut jar opening and closing the lid. He tried all the angles. He soon learned he could not put the lid on the bottom.
His attention level has always amazed me; but the patience he displays while attempting things is very unusual for a child just 21 months old.
Matthew is a true hero in every sense. That look where Matthew has his little finger in his mouth, studying something demonstrates the depth of his concentration. Love you my little hero. grandma wright
Happy valeintines day!
ReplyDeleteCHD Awrness Day :)
Matthew is such a trooper and I'm so glad that they let you both be there with him. bless his heart. I'm sure it was scary for him but look at what a good job he did! It's great that you got pictures. I always forget my camera when we are going for medical stuff... I get so caught up in worrying about Jess and making sure she is ok that I usually leave the camera behind. Oh well.... It's great that the nurse took the pictrues for you.
ReplyDelete:-) I want to say that our camera is part of the stroller accessories! Even if we forget the camera ... we have our cell phone that takes pics... in fact... we got most of our Stanford pics from our cell phones!
ReplyDeleteThis comment has been removed by a blog administrator.
ReplyDeleteWhat an ordeal. My kid would have been flying off the handle. What a champ! I am sure you are SO SO SO proud of him! What a man!
ReplyDeleteGina ... you reminded me of something that Mike always say's about our little hero...
ReplyDelete"Then the expression I've seen a hundred times came over his face...Quiet acceptance of the way life can be".
aaw, poor litle guy. He took it better than I would probably.
ReplyDeleteCute pics!
ReplyDeleteJennyhaha...BTW, did you block me? :D This thing won't accept my comments.
Of course we didn't block you...
ReplyDeletegoofball!
Your descriptive writing is tremendous and it adequately displays the moods that a little boy has been going through most of his life. If ony something could be done to make these visits less painful for him. God Bless.
ReplyDelete