tag:blogger.com,1999:blog-15628716.post3934795330788899178..comments2023-06-26T06:14:05.495-07:00Comments on Matthew's Blog: What is a mic key mom & dad to do???Michaelhttp://www.blogger.com/profile/00589423131224770451noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-15628716.post-27661051469440331282008-10-29T23:44:00.000-07:002008-10-29T23:44:00.000-07:00I always wondered how active kiddos would keep the...I always wondered how active kiddos would keep there buttons in. Guess I see now that it's not so simple. I hope you find a solution soon.<BR/><BR/>Hugs,<BR/>VanessaAnonymoushttps://www.blogger.com/profile/12195604999109772643noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-75402542954195708482008-10-23T08:01:00.000-07:002008-10-23T08:01:00.000-07:00This is my "biggest" fear wheneven babysitting. Ma...This is my "biggest" fear wheneven babysitting. Matthew is such an active little boy and bounces around like a rubber ball. I give mom and dad a lot of credit because they seem to deal with the "missing mic key" button often these days. That band cannot be too much fun; but what a clever idea.....Grandma Whttps://www.blogger.com/profile/01792780940157057699noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-30917449378242973752008-10-23T06:47:00.000-07:002008-10-23T06:47:00.000-07:00i agree completely with your anonymous nurse above...i agree completely with your anonymous nurse above....you are FABULOUS!!! i know you well my dear, and i know you are patient and firm, loving and reassuring....not just anyone can do what you do, so please, big hugs to yourself and family. any sick grumpy child is a pain in the patootie, and i know you handle it all with your usual flair and laughter...hang in there SUPERMOM!!! i am certain that all heart moms and dads are super parents....otherwise God would not give them these special little ones to their care.<BR/><BR/>love you guys! antinesiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-15628716.post-88711205225107276982008-10-22T16:46:00.000-07:002008-10-22T16:46:00.000-07:00Hi Terri! You need to give yourself a BIG BIG hu...Hi Terri!<BR/> You need to give yourself a BIG BIG hug!!! You are super mom! As your forever faithful former NICU nurse, love -JeniAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-15628716.post-44326055163355733482008-10-22T13:13:00.000-07:002008-10-22T13:13:00.000-07:00Sorry you are having to deal with the mic key stuf...Sorry you are having to deal with the mic key stuff. Duct tape? :)<BR/><BR/>Hopefully it stays where it belongs and that little man starts eating like a monster. Tomorrow!The Portashttps://www.blogger.com/profile/07311852620575462361noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-21119415475412145042008-10-22T09:55:00.000-07:002008-10-22T09:55:00.000-07:00Makes me very grateful that Jacob does not have a ...Makes me very grateful that Jacob does not have a mic key - in fact I really feel like we hit the jackpot in heart defects. We have been so lucky. <BR/><BR/>Hopefully the extra water in the balloon will help - even more hopefully he will turn into an avid eater. :-) By the way, I think the ace bandage idea is ingenious.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-15628716.post-30749787478709583962008-10-22T09:06:00.000-07:002008-10-22T09:06:00.000-07:00Amy just sent me an email..they put 6 cc's of wate...Amy just sent me an email..<BR/><BR/>they put 6 cc's of water in the balloon... <BR/><BR/>we still put 4 cc's..<BR/><BR/>I'll ask Dr. Baron tomorrow if we can put in 6... that just may help!!<BR/><BR/>THANKS AMY!!Terri@SteelMagnoliahttps://www.blogger.com/profile/11784173081245407124noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-51622222637740647342008-10-22T06:34:00.000-07:002008-10-22T06:34:00.000-07:00does he have to have this Mic key in forever? It ...does he have to have this Mic key in forever? It seems like you have to be so creative to keep it in!Shelleyhttps://www.blogger.com/profile/17534904024320623895noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-47872853322293432092008-10-21T20:30:00.000-07:002008-10-21T20:30:00.000-07:00Oh, can we relate. I think I had to take Luke to t...Oh, can we relate. I think I had to take Luke to the ER once and then to Dr. Baron's office to have his mic key put back in. Not fun b/c it closes so fast, so then they have to stretch it back out...ouch! Fortunately, it hasn't come out lately. For us it helped when we put more water in the balloon(I'm sure you have already done this).Daynes Familyhttps://www.blogger.com/profile/07376439582444698791noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-77604131920109898922008-10-21T20:06:00.000-07:002008-10-21T20:06:00.000-07:00I cared for a wee girl for 2.6 years who was fed t...I cared for a wee girl for 2.6 years who was fed through a gastrostomy too.. luckily I only ever had to put her key back in twice in all that time! I would hate to have to be doing it all the time! Poor you.... I don't have any suggestions on how to stop it being pulled out so easily either...Chris Hhttps://www.blogger.com/profile/03599144462630400401noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-77726243131298847982008-10-21T19:28:00.000-07:002008-10-21T19:28:00.000-07:00He was actually doing good on sampling... but then...He was actually doing good on sampling... <BR/>but then he got sick.. so now forget it..<BR/><BR/>anyway..<BR/>YES, Matthew's chest looks awesome doesn't it!! We got extrememly lucky.. after the two surgeries..<BR/>I hope it continues to stay that way after his next surgeries...<BR/>you can barely see his "special zipper" and the rib cage grew back together perfectly!!<BR/>I was just feeling in between his little collar bone today and it's perfect.<BR/><BR/>I will ask Mayman what causes that "bump" when I see him Thursday...Terri@SteelMagnoliahttps://www.blogger.com/profile/11784173081245407124noreply@blogger.comtag:blogger.com,1999:blog-15628716.post-3737427082380265262008-10-21T19:18:00.000-07:002008-10-21T19:18:00.000-07:00so when will mr. matthew decide to eat without thi...so when will mr. matthew decide to eat without this thing!? is that the million dollar question? ;) but i can tell you this, matthew's chest sure does look good - mason's is all jacked up esp with the "bump"...<BR/>lisaAnonymousnoreply@blogger.com